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Knowledge Gaps and Barriers to Care in Men with Postprostatectomy Incontinence: Evidence from the German ProKontinenz Trial.

Created on 01 Jul 2026

Authors

Viktoria Menzel, Christoph Kowalski, Sophie Klara Schellack, Rainer Koch, Sebastian Dieng, Axel Haferkamp, Alexander Winter, Andreas Blana, Carsten Schwarzer, Andreas Gonsior, Karl H Tully, Stefan Baltes, Ingo Kausch, Andreas Manseck, Serdar Deger, Firas Jamour, Jörg Erdmann, Ina H Kunz, Holger Kujau, Martina Schleder, Anna Schulze, Jan Ramm, Markus Straub, Jasper Koenig, Dennis Wielander, Andreas Neisius, Hans-Peter Gerbershagen, Felix Wezel, Stefan Conrad, Reinhard Hofmann, Simon Müller, Karl-Dietrich Sievert, Rishav Pradhan, Roger Riexinger, Petra Stamm, Thomas Knoll, Oliver Hahn, Johannes Graff, Ernst-Günther Carl, Johannes Huber, Christian Thomas, Martin Baunacke

Published in

European urology open science. Volume 90. Pages 33-41. Epub Jun 22, 2026.

Abstract

Postprostatectomy incontinence (PPI) reduces quality of life, yet remains undertreated despite effective surgical options. Persistently low intervention rates in Europe for PPI suggest a care gap. This study assessed patients' knowledge of surgical PPI treatments and barriers to treatment uptake.
Cross-sectional baseline analysis of ProKontinenz trial. Men with persistent PPI for ≥12 mo after radical prostatectomy (≥2 pads/d, no prior incontinence surgery) from 34 certified prostate cancer centers were surveyed during January-June 2025, using validated questionnaires and 24-h pad test. The primary outcome was knowledge of incontinence surgery; secondary outcomes included information sources, treatment barriers, and associations with symptom burden/quality of life. Associations with knowledge were assessed using logistic regression.
A total of 526 of 692 men participated (90% response rate). Among the participants, common reasons for not considering incontinence surgery were satisfaction with incontinence products (79%), concerns about surgical risks (53%), and doubts about success of surgery (51%). Fifty-nine percent men reported no knowledge of surgical PPI treatment. Independent predictors of lacking knowledge were low urine loss (odds ratio [OR] 2.4, 95% confidence interval [CI] 1.3-4.7), less severe King's Health Questionnaire (KHQ)-score "role limitation" (OR 2.2, 95% CI 1.1-4.3), concerns about treatment success (OR 2.2, 95% CI 1.2-4.1), and missing information from the urologist (OR 4.2, 95% CI 1.1-16.7) or partner (OR 2.0, 95% CI 1.2-3.8). Limitations of the study include self-reported data and a nonvalidated definition of "knowledge."
Among patients with PPI for ≥12 mo after radical prostatectomy, more than half did not have any knowledge of potentially effective surgery. Information deficits and symptom severity influence knowledge. Strengthening guideline-based information and clinician-patient communication may help close this gap.

PMID:
42383188
Bibliographic data and abstract were imported from PubMed on 01 Jul 2026.

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