Authors
Jemma Hazan, Robert Howard, Jeremy D Isaacs
Published in
International journal of geriatric psychiatry. Volume 41. Issue 7. Pages e70236.
Abstract
The National Health Service (NHS) England Primary Care Dementia Data (PCDD) provides a comprehensive dementia registry, underpinning national policy to improve diagnosis, care, and support.
This paper evaluates the PCDD in comparison with international quality dementia registries (SveDem, NorCog, ADNeT).
We highlight strengths in PCDD coverage and case ascertainment, but also weaknesses in diagnostic specificity and post-diagnostic metrics.
We review currently collected metrics and discuss potential data expansions, including dementia severity and NICE-approved therapy uptake, alongside new targets, such as an 18-week standard for memory assessment service referrals.
PMID:
42391498
Bibliographic data and abstract were imported from PubMed on 03 Jul 2026.
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