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Epidemiological data of pregnant women with fetuses or newborns diagnosed with amniotic band syndrome in Brazil.

Created on 09 Jul 2026

Authors

Y C Da Silva Neri, E Araujo Júnior, R M Moreira, L M Teixeira, L M de Ávila

Published in

Ceska gynekologie. Volume 91. Issue 3. Pages 193-197.

Abstract

This study aimed to analyze epidemiological aspects in Brazil related to women who had fetuses or newborns diagnosed with amniotic band syndrome (ABS), to assess perinatal outcomes of the newborns who received this diagnosis, and to examine the patients' perception regarding the knowledge and support provided by healthcare professionals involved at the time of diagnosis.
This was a quantitative, descriptive, analytical, retrospective, and cross-sectional study based on an online questionnaire administered at a single time point. The sample was randomly defined and included voluntary participation of female patients with a history of pregnancy affected by ABS.
Twenty-two questionnaires were analyzed. There was a predominance of cesarean deliveries and miscarriages among women with a history of ABS. ABS most frequently affected the upper limbs, particularly the hands and arms. A healthcare professional made the diagnosis during prenatal care via ultrasonography in 54.5% of the cases; however, only 40.9% of professionals were reported to be well-informed and to have provided full support. Fetal surgery was performed in only one case diagnosed during prenatal care. Cesarean delivery was predominant, as reported by 17 participants. Out of the 21 children who survived, 54.5% weighed > 2,500 g.
ABS should receive greater emphasis during medical education and professional training updates to enable early diagnosis, intrauterine surgical treatment when indicated, and - most importantly - to ensure adequate guidance and support to the families.

PMID:
42419945
Bibliographic data and abstract were imported from PubMed on 09 Jul 2026.

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