Characterisation of Quality of Life and Its Utility as a Descriptor of Health Outcomes for People With Profound Intellectual and Multiple Disabilities: A Scoping Review of Primary Studies.

Authors

Sarah J Ballard, Hazel M Chapman

Published in

Journal of applied research in intellectual disabilities : JARID. Volume 39. Issue 4. Pages e70273.

Abstract

Establishing the effectiveness of interventions to promote quality of life is essential to providing evidence-based care, optimising outcomes and justifying expenditure on such provision. This review explores how quality of life for adults with profound intellectual disabilities is characterised, measured and utilised to evaluate health interventions in the research literature.
A scoping review of primary research published 2010-2024 was conducted in CINAHL, MEDLINE, APA PsycINFO, APA SocIndex, Education Source, PUBMED, Web of Science and Scopus. 31 publications met inclusion criteria.
Quality of life is multifaceted. No agreed definition or parameters of good, poor, or meaningful changes to quality of life exist for people with profound intellectual disabilities. Existing quality of life scales are not responsive enough to detect changes brought about by health interventions.
More effective tools are needed to provide meaningful quality of life information in relation to health interventions for people with profound intellectual disabilities.

PMID:
42449027
Bibliographic data and abstract were imported from PubMed on 15 Jul 2026.

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