Authors
Pia Fabienne Aschenbrenner, Melisa Kaya
Published in
Klinische Padiatrie. Jul 14, 2026. Epub Jul 14, 2026.
Abstract
Complex congenital heart disease requires specialized care and intensive support for families during infancy. The home monitoring program bridges the gap between inpatient and outpatient care. The aim of the study was to evaluate parental acceptance and satisfaction.
Infants and young children (0-1 year) with complex congenital heart diseases.
From November to December 2024, 201 parents from the DACH region were surveyed using an online questionnaire. Sociodemographic information, experiences with home monitoring, additional medical measures, support services and suggestions for improvement were recorded. 167 valid data sets were evaluated descriptively and using chi-square tests.
80.8% of parents were very satisfied. The accessibility of the facility (85.0%) and contact with the physician (85.6%) were rated particularly positively. 79.6% reported an increased sense of security, 70.7% reported a contribution to their child's health, and 52.7% reported a reduction in their own stress levels. Follow-up care (55.1%) and family support (34.1%) were frequently used as additional support services. Suggestions for improvement mainly concerned digital solutions.
The results illustrate the benefits of HM and show new findings as well as parallels to international studies. The HM should be further developed through digital methods.
Home monitoring is predominantly viewed positively by most families and, according to parents, improves their children's safety and health.
PMID:
42447877
Bibliographic data and abstract were imported from PubMed on 15 Jul 2026.
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