Bridging the Gap in Neuroblastoma Care: Consensus-Based Statements With Recommendations for Improved Patient and Caregiver Experiences.

Authors

Vickie Buenger, Joseph Bauer, Jennifer Diamond, Maggie Fader, Shae Hansen, Jacqueline M Kraveka, Johanna Schoen, Amber Shearer, Dena Sherwood

Published in

Pediatric blood & cancer. Pages e70551. Jul 31, 2026. Epub Jul 31, 2026.

Abstract

Neuroblastoma's complex, heterogeneous biology poses significant diagnostic and therapeutic challenges, often requiring caregivers to absorb complex information and participate in time-sensitive decisions. However, caregivers often feel unprepared to evaluate options. A multidisciplinary panel developed consensus statements, informed by literature review and iterative discussion, to identify caregiver needs and communication priorities. Thirty statements across six domains emphasizing transparent communication, shared decision-making, and recognizing evolving family goals achieved consensus (mean Likert score ≥4.0/5.0). Some statements provide recommendations outlining strategies to strengthen provider-caregiver communication and improve trust, equity, and decision quality in neuroblastoma care through provider education, communication frameworks, and family support resources.

PMID:
42535845
Bibliographic data and abstract were imported from PubMed on 31 Jul 2026.

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