Systemic Barriers and Emotional Complexities in the Transition to Adulthood: The Lived Experience of Parents of Individuals With Intellectual Disabilities in Italy.

Authors

Mariachiara Feresin, Elena Bortolotti

Published in

Journal of applied research in intellectual disabilities : JARID. Volume 39. Issue 4. Pages e70294.

Abstract

The transition to adulthood for individuals with intellectual disabilities (ID) is a complex process marked by significant challenges for families.
Using semi-structured interviews and thematic analysis with 17 parents of individuals with ID, this qualitative research examined transition obstacles, support systems, and emotional responses impacting family reorganization and life projects (LP) definition.
Parents reported difficulties in planning and implementing LP due to standardized approaches, a lack of structured employment pathways, and challenges navigating fragmented services. Emotionally, parents exhibited resilience, pride, and hope, alongside anxiety, frustration, and powerlessness regarding their children's future and the adequacy of support.
The findings emphasize the need for holistic, family-centered support systems addressing practical and emotional needs. The LP framework is promising, but successful implementation requires bridging systemic gaps, enhancing service coordination, and empowering parents to improve outcomes for individuals with ID.

PMID:
42598917
Bibliographic data and abstract were imported from PubMed on 14 Aug 2026.

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