Authors
Heidi Castillo, Sophia Drewry, Amy Heffelfinger, Jennifer T Queally, Kurt A Freeman, Vanessa Avemil, Richard Adams, Pamela Murphy, Kathryn Smith, Audrey Roach, Gregory Heuer, William Walker, Jonathan Castillo, Catharine Riley
Published in
Journal of pediatric rehabilitation medicine. Pages 18758894261485648. Aug 28, 2026. Epub Aug 28, 2026.
Abstract
PurposeAlthough intelligence quotient (IQ) testing can help identify cognitive issues, data on IQ testing in the spina bifida (SB) population is limited and difficult to collect. This study aimed to identify factors influencing IQ test reporting among individuals in the National Spina Bifida Patient Registry (NSBPR).MethodsA descriptive analysis of 1,017 individuals aged 4 to 22 years from five NSBPR clinics was conducted. Characteristics of participants with a full-scale intelligence quotient (FSIQ) score (n=435) were compared to those without (n=582). Multivariable logistic regression was used to calculate odds ratios (ORs) and 95% confidence intervals (CIs) to determine the likelihood of having an FSIQ score, adjusting for sex, race, ethnicity, insurance status, functional level of lesion, and clinic.ResultsIndividuals who received full-time (OR=1.83, 95% CI: 1.16, 2.88) or some (OR=1.97, 95% CI: 1.38, 2.82) academic accommodations were more likely to have an FSIQ score. The mean age at IQ testing was 9.7 years (SD: 4.0), and mean FSIQ score was 81.3 (SD: 16.9).ConclusionHistory of academic accommodation was associated with having FSIQ scores. Average FSIQ score was lower than the normative population, highlighting the need for broader testing and care among people with SB.
PMID:
42664414
Bibliographic data and abstract were imported from PubMed on 29 Aug 2026.
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