Beyond Caregiving: Recovery and Growth Among Primary Caregivers Following the Loss of a Family Member Living With Dementia.

Authors

Wen-Ying Chang, Shan-Mei Chang, Wen-Jiuan Yen, Wei-Fen Ma

Published in

International journal of geriatric psychiatry. Volume 41. Issue 9. Pages e70249.

Abstract

Caring for a family member with dementia places long-term emotional, physical, and social strain on primary caregivers. Although extensive research has examined the caregiving phase, relatively few studies have explored caregivers' recovery experiences following bereavement, particularly in Chinese cultural contexts.
To explore the post-bereavement recovery among primary family caregivers of individuals with dementia, with specific attention to emotional adjustment, life transitions, and identity reconstruction.
Descriptive qualitative study.
13 former full-time co-resident family caregivers were purposively recruited within 24 months of the death of a family member with dementia. All participants had provided care for at least 1 year before bereavement.
Semi-structured, in-depth interviews were conducted between October 2022 and January 2024. Data were analyzed using inductive content analysis informed by Lincoln and Guba's 10-step framework. Trustworthiness was enhanced through credibility, dependability, transferability, and confirmability.
Four themes were identified: (1) Weathering the storm of caregiving-persistent emotional, physical, and spiritual distress; (2) Gradual relief and reclaiming freedom-restoration of daily routines, health, and autonomy; (3) Reconnecting with social life-renewed engagement in social roles and community; and (4) Reflection and emerging hope-lingering grief alongside future planning and personal growth. Many participants reported a sense of emotional relief after the death of the person with dementia, whereas others continued to struggle with loneliness, unresolved guilt, and role loss. Preliminary patterns also suggested that gender and the caregiver-care recipient relationship may influence recovery trajectories.
Post-bereavement recovery among family caregivers of people with dementia is a complex, culturally mediated process. Tailored, culturally sensitive interventions are needed to support emotional healing, identity redefinition, and social reintegration, with particular attention to male caregivers and adult children.

PMID:
42669044
Bibliographic data and abstract were imported from PubMed on 30 Aug 2026.

Read full publication at:
Please sign in to see all details.

Stats

1-terrible, 9-excellent. How would you rate this publication? Sign in in to submit your rating.

Post a comment

You need to be signed in to post comments. You can sign in here.

Comments

There are no comments yet.