Collective interests, health research ethics and data governance for Indigenous Sámi populations.

Authors

Susanna Ragnhild Andersdatter Siri, Christina Storm Mienna, Per Axelsson

Published in

PLoS medicine. Volume 23. Issue 9. Pages e1005250. Epub Sep 14, 2026.

Abstract

The General Data Protection Regulation (GDPR) provides a robust framework for regulating individual data collection, use, reuse, and storage across Europe, but offers limited safeguards for collective rights, such as those of Indigenous peoples. Here, we examine specific ethical guidelines and governance principles relevant to the Sámi population, and those general for Indigenous peoples, and offer recommendations for best practices in health research.

PMID:
42735195
Bibliographic data and abstract were imported from PubMed on 15 Sep 2026.

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