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Online Patient Support Communities as Sources of Support, Risk, and Research for Rare or Contested Conditions.

Created on 22 Sep 2026

Authors

Vanessa Nirode

Published in

Journal of medical Internet research. Volume 28. Pages e111170. Sep 18, 2026. Epub Sep 18, 2026.

Abstract

When research, treatment, and support are scarce, where can people living with rare or contested conditions turn? In this News and Perspectives article, JMIR Correspondent Vanessa Nirode reports on the role that online patient support communities play, highlighting People Allergic to Me syndrome as a case study.

PMID:
42766721
Bibliographic data and abstract were imported from PubMed on 22 Sep 2026.

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