Authors
Hui Wang, Beining An, Jing Xu, Yanhua Han, Tingting Li, Jingwen Ding, Ranran Chai, Min Zheng, Qinzhu Tang, Guangqin Jin, Jihua Huang, Yu Kang
Published in
BMJ open. Volume 16. Issue 9. Pages e114511. Sep 28, 2026. Epub Sep 28, 2026.
Abstract
This study aimed to explore the developmental experiences and nursing needs of female patients diagnosed with Peutz-Jeghers syndrome (PJS) during childhood, thereby providing references for developing targeted nursing interventions.
Using purposive sampling, face-to-face semistructured interviews were conducted with female patients diagnosed with PJS in childhood. Data were gathered and examined using directed content analysis based on phenomenological research principles.
The study was conducted in Shanghai, China.
In total, 35 female patients diagnosed with PJS in childhood were interviewed.
Three themes and nine subthemes emerged: microsystem (self-perception and social barriers, challenges related to marriage and childbearing, physiological and psychological distress and treatment adherence pressure), mesosystem (inadequate family communication and support, as well as social isolation) and macrosystem (uneven distribution of medical resources, weak social support networks, as well as inadequate policy and insurance coverage).
Female patients with childhood-onset PJS face diverse and complex challenges within their social environments. Healthcare professionals should recognise the physical and psychological impacts of the illness, provide appropriate interventions to address patients' needs and help maintain ecosystem stability.
PMID:
42805637
Bibliographic data and abstract were imported from PubMed on 29 Sep 2026.
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