Self- and Caregiver-Reported Choice-Making in Autistic Adults: Development and Validation of the AASPIRE-Choices and Decisions Scale.

Authors

So Yoon Kim, Kristen Gillespie-Lynch, Steven K Kapp, Liu-Qin Yang, Anna Furra Wallington, Dora M Raymaker, Ian Moura, Katherine McDonald, Joelle Maslak, Rachel Kripke-Ludwig, Andrea Joyce, Willi Horner-Johnson, Emanuel Frowner, Mary Baker-Ericzén, Christina Nicolaidis

Published in

Autism research : official journal of the International Society for Autism Research. Pages e70374. Oct 06, 2026. Epub Oct 06, 2026.

Abstract

Self-determination has been assessed as an internal psychological construct. External factors may also affect self-determination, but opportunities to make choices and decisions remain understudied. We developed and evaluated the AASPIRE-Choices and Decisions Scale (AASPIRE-CDS), a new measure of autistic adults' opportunities to make choices and decisions, using a community-based participatory approach. We created and refined the AASPIRE-CDS through an iterative process. Data from the AASPIRE Outcomes Project included 839 autistic adults participating through direct report, direct-report caregiver-supported, and caregiver report (CR). Exploratory and confirmatory analyses supported a unidimensional structure. Measurement invariance analyses supported configural, metric, and partial scalar invariance across report type without CR, and across living status, with and without CR. The AASPIRE-CDS showed high internal consistency, test-retest reliability, and preliminary responsiveness to change over time. Convergent validity analyses showed that higher AASPIRE-CDS scores were associated with greater self-determination and communication fluency, more independent living, and fewer support needs. The AASPIRE-CDS showed weaker (albeit significant) associations with quality of life, overall health, and employment satisfaction than the self-determination measure showed with these variables. This pattern suggests that opportunities for choice-making are related to, but distinct from, commonly used measures of self-determination. Findings support the AASPIRE-CDS as a valid and reliable measure of choice-making opportunities in autistic adults across support needs but suggest caution interpreting CR. They underscore the importance of supporting autistic adults' choice-making and evaluating opportunities for choice alongside internal self-determination. Future research should use larger CR samples to examine the validity of caregiver-reported choice-making opportunities.

PMID:
42839619
Bibliographic data and abstract were imported from PubMed on 07 Oct 2026.

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