Methods for developing and validating outcome measures in paediatric rheumatology.

Authors

Rafael Curbelo, María Jesús García de Yébenes, Loreto Carmona

Published in

Pediatric rheumatology online journal. Volume 24. Issue 1. Jul 22, 2026. Epub Jul 22, 2026.

Abstract

Developing and validating patient-reported outcome measures (PROMs) requires a specific methodology to ensure that these tools reliably capture patients' subjective experiences of health without clinician bias, thereby supporting their use in patient-centred care for children with chronic diseases. The aim of this article is to review this methodology, emphasising its advantages, and identify unmet needs and priorities for future research in this area. It also introduces the COSMIN and OMERACT initiatives and related aids, as well as the EULAR OML, all of which are critical for developing and selecting the most adequate PROMs in Paediatric Rheumatology.

PMID:
42888440
Bibliographic data and abstract were imported from PubMed on 17 Oct 2026.

Read full publication at:
Please sign in to see all details.

Stats

1-terrible, 9-excellent. How would you rate this publication? Sign in in to submit your rating.

Post a comment

You need to be signed in to post comments. You can sign in here.

Comments

There are no comments yet.