Authors
Marie Nedergaard Jeppesen, Jane Clemensen, Malene Søborg Heidemann, Birgitte Hertz, Bodil Rasmussen, Mette Juel Rothmann
Published in
Scandinavian journal of caring sciences. Volume 40. Issue 4. Pages e70313.
Abstract
Providing home-based care to children with type 1 diabetes (T1D) places healthcare professionals (HCPs) in complex and demanding practice contexts. Outside the clinic, HCPs must adapt their expertise to families' everyday lives, navigate shifting roles and manage emotional and relational challenges, particularly when working with vulnerable families. These situations often involve competing priorities, social constraints and complex family dynamics that challenge conventional care approaches and require additional competencies and support. Despite this, HCPs' perspectives remain underexplored. Therefore, this study aims to explore how HCPs experience, interpret and respond to the challenges and needs that arise when delivering diabetes care in the homes of children with T1D and their families in vulnerable positions.
A qualitative study with a phenomenological-hermeneutical approach inspired by Paul Ricoeur's philosophy of interpretation and narrative was conducted using 75 h of field observations and two focus group interviews with 14 HCPs. Data were analysed through naïve reading, structural analysis and critical interpretation.
Home-based diabetes care was experienced as an ongoing process of learning and development, involving the expansion of competencies and the renegotiation of professional roles. Expert knowledge as the foundation for care provided stability but required adaptation to family contexts. Interpersonal work and emotional challenges involved building trust, managing relationships and coping with emotional strain and uncertainty. New and unfamiliar issues included encountering complex psychosocial problems, ethical dilemmas and role ambiguity, often beyond HCPs' expertise. Together, these dimensions illustrate how home-based care demands flexibility, emotional engagement and broader competencies, while increasing the need for supervision, peer support and organisational guidance.
Home-based T1D care in vulnerable families is experienced as a complex, evolving practice requiring adaptable clinical and relational competencies, emotional engagement and role flexibility. Increased psychosocial demands highlight the need for structured education, supervision, organisational support and strengthened multidisciplinary and intersectoral collaboration.
PMID:
42904583
Bibliographic data and abstract were imported from PubMed on 23 Oct 2026.
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